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789
请点击照片观赏视频
为渐冻症募款的冰桶挑战发起人彼得·弗瑞兹(Pete Frates)周二辞世,享年34岁。曾是美国大学棒球队员的弗瑞兹与俗称渐冻人症的肌萎缩性脊髓侧索硬化症(ALS)缠斗7年。
法新社报道,弗瑞兹在麻州波士顿郊区比佛利(Beverly)的住家过世。家人在声明中说:“弗瑞兹与ALS勇敢奋斗后,在亲爱的家人陪伴下安详辞世,享年34岁。”
“重要的是,彼得从未抱怨过他的病。相反的,他认为这是一个为其他患者及他们家人带来希望的机会。”
“彼得启发世界各地许许多多的人,让他们从他的勇气和韧性得到力量。”
弗瑞兹2012年27岁时诊断罹患肌萎缩性脊髓侧索硬化症(Amyotrophic Lateral Sclerosis,ALS)。患者肌肉会逐渐软弱无力,身体功能日益退化。目前仍无药物可有效治疗。
弗瑞兹号召一群友人为渐冻人募资,他发起的活动包括用水桶装冰水倒在头上,然后将过程上传社群媒体,并且指名其他人接受挑战,一同响应捐款。
渐冻人冰桶挑战在2014年夏天席卷全球,美国男星汤姆克鲁斯(Tom Cruise)、大导演史蒂芬史匹柏(Steven Spielberg)、微软创办人比尔.盖兹(BillGates)甚至前总统小布希(George W. Bush)等各界许多名人都上传挑战视频到社群网站。
美国肌萎缩性脊髓侧索硬化症协会(ALSAssociation)报告说,这波活动募得超过2亿2000万美元(约9亿1597万令吉)。
弗瑞兹2017年曾被误传过世,当时他幽默回应谣言,上传45秒视频到推特,画面中可以看到他躺在医院病床上,背景音乐放著珍珠果酱合唱团(Pearl Jam)的歌曲Alive,表示他还活着。
找工作, 就找这里!
› 立即申请
- GMBB Part Timer
- Event
- Kuala Lumpur
-
MYR 100.00 /Day
› 立即申请
- Social Media Marketing Executive
- Advertising & Marketing
- Kuala Lumpur
-
MYR 6K /Month
› 立即申请
- PHP Software Developer
- Information Technology
- Wilayah Persekutuan
-
MYR 6K /Month
› 立即申请
- DevOps Software Engineer
- Information Technology
- Kuala Lumpur
-
MYR 6.5K /Month
› 立即申请
- Java Software Engineer
- Information Technology
- Kuala Lumpur
-
MYR 10K /Month
› 立即申请
- Cashier and Kiosk Management for Kiosk
- Event
- Kuala Lumpur
-
MYR 100.00 /Day
› 立即申请
- Curated Store
- Event
- Kuala Lumpur
-
MYR 100.00 /Day
› 立即申请
- Gallery Sitter
- Event
- Kuala Lumpur
-
MYR 100.00 /Day
› 立即申请
- 软件测试与客户支持专员 Software Testing & Customer Support Specialist
- Information Technology
- Kuala Lumpur
-
MYR 3K /Month
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